Disability Pride Month is celebrated every July. It is an opportunity to celebrate the Americans With Disabilities Act. July 26th will mark the 33rd anniversary of the Americans with Disabilities Act. A lot has happened since the ADA was signed into law. In theory it prohibits discrimination against people with disabilities in several areas, including employment, transportation, public accommodations, communications and access to state and local government’ programs and services. Unfortunately, we have a long way to go in practice. 33 years later we have Section 752 of the Consolidated Appropriations Act of 2023. This signals a new chapter in the pursuit of digital accessibility for federal agencies.
“The federal government can be the exemplar and catalyst for private- and public-sector accessibility by continuing to prioritize the employment of people with disabilities while providing the appropriate accessible infrastructure that facilitates our success.”
Anil Lewis, executive director of blindness initiatives for the National Federation of the Blind
A favorite part of my job is organizing a monthly Accessibility Community of Practice meeting. Folks from all over the company join us for a conversation about my favorite topic. Many months I’ve mentioned lifelong activist Judy Heumann in some capacity. In February, I spoke about the intersectionality between Black History Month and disability activism. I focused on the 504 Sit-In and Black Panther Party member Brad Lomax who was also a disability activist. He coordinated efforts to have the Black Panthers support protesters during the 25-day sit-in. In photos I’ve seen from the era, Judy Heumann is sitting right by his side.
She was an internationally recognized disability rights leader, often heralded as the Mother of the Disability Rights movement. Earlier this month, I was shocked and saddened when she passed away. She was a legend and still such a powerhouse in the ongoing fight for disability rights. I happened to be reading her autobiography when I heard the news (and when my copy from the library was due, I purchased my own).
One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society.
If you haven’t already, I highly recommend watching the Crip Camp documentary on Netflix. It tells the true story of how a summer camp for teenagers with physical and mental disabilities laid the groundwork for a civil rights victory. Featuring Judy Heumann and her fellow activists. This small group of people came together in the right place at the right time and wound up working together to effect great change. They were instrumental in the passage of the Americans with Disabilities Act (ADA) of 1990.
Rachel Maddow posted a lovely celebration of the life and accomplishments of Judy Heumann.
In 2018, the United Nations issued a proclamation declaring January 4th to be World Braille Day, on the anniversary of Louis Braille’s birth. Read more about his life on this page with 19 Fascinating Facts About Louis Braille. We celebrate him now as someone determined to invent a system of reading and writing to bridge the gap in communication between the sighted and the blind. In his own words:
Access to communication in the widest sense is access to knowledge, and that is vitally important for us if we [the blind] are not to go on being despised or patronized by condescending sighted people. We do not need pity, nor do we need to be reminded we are vulnerable. We must be treated as equals – and communication is the way this can be brought about.
Braille is a tactile representation of alphabetic and numerical symbols using six dots to represent each letter and number, and even musical, mathematical and scientific symbols. Braille (named after its inventor in 19th century France, Louis Braille) is used by blind and partially sighted people to read the same books and periodicals as those printed in a visual font.
Braille is essential in the context of education, freedom of expression and opinion, as well as social inclusion.
Braille has come a long way since the 1800s. Now there are refreshable braille displays — computer hardware which has a series of refreshable, or fluid, braille cells on its surface.
Braille displays provide access to information on a computer screen by electronically raising and lowering different combinations of pins in braille cells. A braille display can show up to 80 characters from the screen and is refreshable—that is, it changes continuously as the user moves the cursor around on the screen, using either the command keys, cursor routing keys, or Windows and screen reader commands. The braille display sits on the user’s desk, often underneath the computer keyboard. The advantages of braille displays over synthetic speech are that it provides direct access to information; allows the user to check format, spacing, and spelling; and is quiet.
It’s a bit like carrying around an e-book vs lugging around boxes and boxes of books. Though this equipment is still expensive, it is becoming more affordable as the technology advances.
However, more needs to be done. The U.S. Food and Drug Administration does not mandate the inclusion of braille lettering on pharmaceutical drug packaging. In many cases, these examples are the exception rather than the rule. I want inclusive communication, in all forms, to become the norm.
Capitalism never stops. Pre-internet, I recall the deluge of catalogs and mailers clogging up our mailbox. Plus the endless commercials on tv and radio. We still have that, despite trying to opt out of it. E-commerce has made it even more excruciating. Unless one is diligent with their ad blockers, nearly every website visit shoves ads in our faces and we end up on email lists from any company we’ve purchased something from in the last decade. I first learned about “Buy Nothing Day” 20+ years ago and I’m a big fan. I relate to the slogan “the more you consume the less you live.” In the U.S., most of us have so much unnecessary stuff. When I do give gifts to friends and family, I prefer experiences over things. Travel, activities, food, etc. We’re in the thick of the holiday shopping frenzy again. Black Friday has passed, and yesterday was Small Business Saturday. If you are planning to shop this season, please consider supporting the organizations who employ those of us with disabilities.
“82% of people with disabilities are unemployed. How can you support our community this holiday season? Look no further — check out this list of Small Businesses that specifically employ and support us!!! 👇 👇 👇
Popcorn for the People, led by CEO Rachel Cheng, creates careers for disabled people – specifically people with autism. I ordered Butter, Cheddar, Cookies n’ Cream, and Caramel and received my bright red box this week. Let me tell you — all of the flavors are phenomenal! My personal favorite way to eat popcorn is by mixing caramel and cheddar together for a sweet and savory sensory explosion. What’s your favorite flavor??
Bitty & Beau’s Coffee was created by parents Amy Wright and Ben Wright, who have four beautiful children — three of whom have autism and Down Syndrome. They primarily employ people within the autistic and Down Syndrome communities as a way to show that individuals with differences can be a valuable, contributory part of their community! (And their coffee is pretty badass too — check out the holiday roast! I had it during a recent visit to their Annapolis, MD location, but you can ship nationwide across the United States!
Design By Humans is an art collective founded by Mindy Hernandez that supports many disabled artists (my personal favorite is DisabledAF) that you can find by searching “disabled” at the top of the page. I love the way DisabledAF specifically situates themselves at the intersection of Queer and Disabled, my favorite place to be!!
Collettey’s Cookies was founded by Collette Divitto, a rockstar speaker and human with Down Syndrome. She employs 10+ other employees, all with disabilities. You can check out much more of her story on YouTube!
Alissa Smith is a cancer survivor and an incredible warrior who lives with chronic illness… AND she’s an incredible jewelry designer!! Check out her creations at her online store and support her efforts! The Harper Cosmopolitan ring is absolutely stunning… which piece is your favorite??
Tricia Baden suffers from Lyme Disease, which causes chronic headaches. The toxins in regular candles can exacerbate headaches and migraines, so everyone benefits from her amazing scents at Flores Lane that are toxin-free and use a soy-based wax! The chakra and meditation collection is my personal favorite for my Buddha and crystal altar!”
“In 2018, Tasya toured Jewish Housing and Programming and the kitchen at Cornerstone Creek, where she learned more than 82 percent of adults with disabilities are unemployed. She decided to create a workplace for people of all abilities.
Tasya moved production to Cornerstone Creek and began partnering with social service organizations and advocating for persons with disabilities. Now more than half of the staff at Isadore Nut Company are adults with developmental or intellectual disabilities.
Tasya believes that everyone, regardless of ability, should be given the opportunity for employment because everyone holds value and has something to contribute.”
The annual global event, World Usability Day, will be observed on Thursday, November 10th, 2022. I’m slated to deliver accessibility training to international colleagues that day, so I’ll be missing my local UXPA MN event but I’m a big fan. World Usability Day is a single day of events occurring around the world that brings together communities of professional, industrial, educational, citizen, and government groups for a common objective: to ensure that the services and products important to life are easier to access and simpler to use. The theme for this year’s World Usability Day is “Our Health.”
In our theme “Our Health” we look to explore systems that provide healthcare in all its many forms such as virtual/telehealth, electronic health records, healthcare products and all digital health related solutions. This theme will help us explore timely and important issues such as continuity of care, access to treatment, telemedicine, systems for mental health, exercise, nutrition and many more. In addition, Our Health includes health problems related to environmental issues such as air and water pollution impact on health.
If the UN recognizes usability as a core digital technology value, this will create an awareness of HCI/UX at the policy making level, increase the public engagement with the investment in user experience, potentially lead to a global impact, and let usability do its part for the UN’s Sustainable Development Goals.
Some of you may know about Pennsylvania senate candidate John Fetterman, who experienced a stroke in May of 2022. This left him with some auditory processing challenges. He is now making us of assistive technologies like closed captioning. Despite your political beliefs, his public use of AT should be celebrated for a number of reasons. He’s helping to normalize and destigmatize temporary and permanent disabilities. His willingness to use common assistive technologies in his personal and professional life shows he is adaptable and can troubleshoot. Unfortunately, this has led to some awful ableist attacks.
The lines of attack used against Fetterman, many of which are ableist (meaning they convey prejudice, either overt or subtle, against people with disabilities), tap into long-standing stereotypes about people with disabilities and could affect voters’ perceptions of him. That’s because there continues to be stigma against people with disabilities, according to Lisa Schur, a co-director of the Rutgers Program for Disability Research. As a result, she said, political “candidates with disabilities have to work extra hard to ensure voters that, yes, I’m competent and capable of doing the job.” This stigma can be particularly intense for candidates with mental or cognitive disabilities — or even for candidates where questions are raised about their cognitive function.
This is all upsetting enough, but particularly jarring as October is National Disability Employment Awareness Month:
Observed annually in October, National Disability Employment Awareness Month (NDEAM) celebrates the contributions of America’s workers with disabilities past and present and showcases supportive, inclusive employment policies and practices. In recognition of the important role people with disabilities play in a diverse and inclusive American workforce, the theme for NDEAM 2022 Disability: Part of the Equity Equation.
But it’s not all bad news. Teen Vogue put out an excellent op-ed about how ableism bars people with disabilities from seeking — or winning — elected office. While discouraging, they describe some gains:
Despite systemic inaccessibility and ableism in electoral politics, the disability community continues to gain mainstream attention around its political participation through organizing and movements like #CripTheVote. As these movements have grown, disabled candidates and elected officials are being more open about their disabilities and we have seen a number of historic firsts: the first full-time wheelchair users serving in Colorado and Arizona, the first appointed and elected Deaf mayors, and some of the first openly autistic state legislators.
Meanwhile, some cool programs are popping up around the country:
Ablr Works is the workforce development arm of LCI, one of the largest employers of Americans who are blind or visually impaired with headquarters in Durham. It has teamed up with the North Carolina Department of Health and Human Services’ Division of Services for the Blind (DSB) to kick off the statewide initiative this month. The benefits are twofold: It will make websites and digital content more accessible, as well as reduce the high unemployment rate among people with disabilities, the company said.
And last but not least, disabled people were among the hardest hit by pandemic-related job losses, but the rise in remote work also created new opportunities.
Recent employment figures indicate that disabled people have, in fact, gained a stronger foothold in the workforce, likely due to the popularity of remote work. According to the Bureau of Labor Statistics, the number of disabled workers ages 16 to 64 who are employed was well over 5.5 million during the summer months; as of September, that figure had crossed 5.8 million, accounting for nearly 4% of workers overall. The labor force participation rate rose to 38% in September, up from 37.6% in August, a year-over-year increase from 36.4% in September 2021.
Writer, disability-justice activist and performance artist Leah Lakshmi Piepzna-Samarasinha knows that it’s possible for society to become more equitable. They envision a future in which “people are free to be, regardless of their ability to fit into capitalist institutions.”
I’m excited by the work of activists like Leah Lakshmi Piepzna-Samarasinha. And their latest book that “lays out a bare-bones agenda for what is needed to make the U.S. more socially just: affordable, available and accessible housing; healthcare and pharmacare; a universal basic income for all residents; free, high-quality public education programs; and the elimination of punitive policing and incarceration.” A resounding YES PLEASE to all of it!
Unfortunately, the systems in place are resistant to change. Instead, those in power propose much smaller, incremental tweaks. For example, recently the State Department announced the finalization of their Five-year Diversity, Equity, Inclusion, and Accessibility (DEIA) Strategic Plan. Don’t get me wrong, this more intersectional approach is a step in the right direction. But it will only protect federal employees. Only 20% of people with disabilities are employed, compared to 64% of non-disabled people, according to the U.S. Bureau of Labor Statistics. That’s a huge gap. Only 4% of DEI initiatives include disability and that’s just in organizations that even have a DEI initiative. Most companies don’t have their disabled employees or customers in mind. A perfect example came from the amazing Meryl Evans. Yesterday she posted about her experience with an Apple Watch, and more.
“People with disabilities can bring a lot more to your team than what you see on their resumes.
They have an uncanny ability to come up with innovative ideas and solutions. Feeling excluded has a way of driving people with disabilities.
For instance, I never wanted an Apple Watch. I hadn’t worn a watch in years. A friend convinced me to try it. It made my life as a deaf person easier!
How? It became an accessibility tool.
It buzzes when cooked food is ready. No more overcooked food! It buzzes when someone is at the door. No more packages sitting on the porch for stealing. No more leaving my sister stranded on my doorstep when she dropped by unexpectedly.
No one advertises these benefits. Apple never marketed it that way. If they had, they may have gotten more buyers and fans.
These are examples of how someone who is different from you can innovate and come up with creative solutions.
We don’t always click when we meet someone. This isn’t because of a bad interview. We tend to click with those most like us. You’ll gain more when hiring someone different from you.
The thought of creating a more accessible hiring process feels overwhelming. Just start. How can you get started?
– Ask every candidate what accessibility they require. – Verify the online application process is accessible for keyboard-only navigation and works with screen readers.
These are starting points. Keep working on it and adding more pieces. Progress over perfection. Just start.”
Again, yes to all of these things! I’m neurodivergent and have an auditory processing disorder. I wear noise-canceling headphones a good portion of the day. The Apple Watch’s haptic feedback has made my life so much easier too. And I want that for others. There’s so much we could do, as a society, to improve the quality of life for our fellow humans. But the pace of change is moving too slowly. More people are being forced to survive with less…while profit margins are on the rise for those at the top. We could all be thriving instead.
We’re nearly a week into July, but I’ve just found a great way to engage with Disability Pride Month. It’s not too late to join in! Visit Kelsey Lindell’s site to sign up for the challenge. She will email you a calendar of activities. These are things like listening to podcast episodes, watching the Crip Camp documentary, following disability activists, sharing information with friends and colleagues, etc. Below is information from her site.
Disabled people still don’t have our basic civil and human rights:
Due to a loophole in the law, there is no national minimum wage for disabled people. The average amount disabled people get paid is $3.34 an hour, versus the federal standard of $7.25.
This continues because most people don’t know this is happening. So, we’ve created a bootcamp for you. Each day you’ll get a prompt or call to action that will help you learn about ableism, disability history, disability justice and how to be a better ally. We’ll send you lists of amazing disabled creators to follow, podcasts to listen to, free events to attend, entertaining and educational clips and films to watch and so much more!
The Disability Pride Flag was a collaborative design effort by Ann Magill, a disabled woman, with feedback within the disabled community to refine its visual elements:
Having All Six “Standard” Flag Colors: signifying that Disability Community is pan-national, spanning borders between states and nations.
The Black Field: Mourning and rage for victims of ableist violence and abuse
The Diagonal Band: “Cutting across” the walls and barriers that separate the disabled from normate society, also light and creativity cutting through the darkness
The White Stripe: Invisible and Undiagnosed Disabilities
The Americans with Disabilities Act (ADA) was signed into law on July 26, 1990. This was decades in the making. For those unfamiliar with the history, one great starting point is the 2020 documentary Crip Camp: A Disability Revolution. Growing up, I didn’t have any summer camp experiences (we were too poor). But I sent my son to a summer camp with an autism inclusion program. He wouldn’t have been able to attend otherwise. This program was in place thanks to the work of those who came before us. Disability Pride Month has been celebrated in July since 1990, along with the ADA victory. The disabled community isn’t a monolith. But members come together to support one another. Disability justice movements advocate for intersectional approaches to meet the needs of people with disabilities. The “nothing about us without us” mantra was born from this movement, expressing the conviction of people with disabilities that we know what is best for us.
Disability Pride Month looks to celebrate disability as an identity by sharing the experiences of the disabled community. The reason behind the month is a chance to share the joy and pride that disabled people can bring to their local and global communities. The disabled community is a vibrant part of society and makes up 15% of the population, and we are proud of that.
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
And Alice Wong is at it, again. This time with a memoir! I’ve pre-ordered my copy from my favorite local bookstore, Moon Palace. You can support local bookstores too!
This groundbreaking memoir offers a glimpse into an activist’s journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project
In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong.
Drawing on a collection of original essays, previously published work, conversations, graphics, photos, commissioned art by disabled and Asian American artists, and more, Alice uses her unique talent to share an impressionistic scrapbook of her life as an Asian American disabled activist, community organizer, media maker, and dreamer. From her love of food and pop culture to her unwavering commitment to dismantling systemic ableism, Alice shares her thoughts on creativity, access, power, care, the pandemic, mortality, and the future. As a self-described disabled oracle, Alice traces her origins, tells her story, and creates a space for disabled people to be in conversation with one another and the world. Filled with incisive wit, joy, and rage, Wong’s Year of the Tiger will galvanize readers with big cat energy.
Growing up in the 70s and 80s, my childhood was chock full of microaggressions and microinvalidations. At school and at home. Most often related to my ethnicity, gender, intelligence, physical appearance, etc. Some classmates called me “Qaddafi’s daughter” for years, despite my family coming from a completely different country — Lebanon — a continent away from Libya. Often there were outright slurs too. Directed at me, but also bandied about so casually in day-to-day life and in pop culture. It’s appalling. I cringe when I attempt to rewatch many movies and television shows from my youth. We have come a long way but there is still so much work to do. We can and should strive to learn and grow. Which Lizzo has done recently and done well.
Following criticism that her new single, “Grrrls,” included the word spaz, Lizzo announced on Monday that she has released another version of the track with the offending lyric removed. “It’s been brought to my attention that there is a harmful word in my new song,” Lizzo wrote in a statement accompanying the rerelease. “Let me make one thing clear: I never want to promote derogatory language. As a fat black woman in America, I’ve had many hurtful words used against me so I overstand the power words can have (whether intentionally or in my case, unintentionally).”
When situations like this come up, as they often do, I share one of my favorite resources.
What is self-defined?
A modern dictionary about us. We define our words, but they don’t define us.
Self-Defined seeks to provide more inclusive, holistic, and fluid definitions to reflect the diverse perspectives of the modern world.
With the foundation of vocabulary, we can begin to understand lived experiences of people different than us. Words can provide us with a sense of identity and allow us to find kinship through common experiences.
Unfortunately, ableism continues to go unaddressed in too many diversity initiatives. Kelsey Lindell has some excellent suggestions on how to avoid situations like these in the future:
