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Category: education

Against Technoableism

2023 has been a great year for books in the disability space. Previously, I posted about Sounds Like Misophonia by Dr. Jane Gregory. Most recently, my copy of Against Technoableism arrived.

When bioethicist and professor Ashley Shew became a self-described “hard-of-hearing chemobrained amputee with Crohn’s disease and tinnitus,” there was no returning to “normal.” Suddenly well-meaning people called her an “inspiration” while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don’t want what the abled assume they want—nor are they generally asked. Almost everyone will experience disability at some point in their lives, yet the abled persistently frame disability as an individual’s problem rather than a social one.

The MIT Press Bookstore

Technology needs to do more for people with disabilities. Ashley Shew argues that it’s not the individuals who need “fixing,” it’s their environment. The author is participating in an upcoming free talk. The ITS Technoableism seminar series presents: Ashley Shew on Monday, January 15th, 2024. She was also a guest on The Disability Rights Florida podcast last month.

Against Technoableism: Rethinking Who Needs Improvement (A Norton Short)

Prior to that, the most recent addition to my non-fiction book stack was The View From Down Here: Life as a Young Disabled Woman by journalist Lucy Webster. In her own words, it is “a memoir exploring what it’s like to live at the intersection of ableism and sexism, how these forces have shaped me, and how society often fails to see disabled women as women at all.” Get the book and sign up for her newsletter!

The View From Down Here: Life as a Young Disabled Woman By Lucy Webster book cover Out Sept 2023

Skipping back to October, a couple of significant things occurred. After years of wondering, I was formally diagnosed with autism and ADHD. On the same day I had my final session with my fantastic clinician, a book I pre-ordered arrived. And, in the most ADHD move ever, another copy of the same book showed up the next day. Apparently, I’d pre-ordered it two days in a row without realizing it. That book was Unmasked: The Ultimate Guide to ADHD, Autism and Neurodivergence by Ellie Middleton. Thankfully, I was able to give the second copy to a friend who has been pondering her own neurodivergence.

“Learning the way my brain works has changed everything for me,” she says, and describes herself as almost being a poster girl for what can happen when you get the answers you need.

Ellie Middleton BBC Access All
Author Ellie Middleton grinning while holding a copy of her book Unmasked: the ultimate guide to ADHS, autism, and neurodivergence
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An Invisible Disability

June is National Migraine and Headache Awareness Month.

I have a personal connection to this sort of chronic pain. I’ve had migraines since I was a teenager. Thankfully, those tapered off in my 30s for the most part. But last November I started having a headache that never stopped. After two visits with my primary care doctor, I was referred to neurology in December. I booked the first available appointment with a headache specialist. That appointment was May 31st. It has been an awfully long time to wait but I want to gush about how great specialists are. The woman who saw me really knows her stuff. I finally have a treatment plan in place. It’s not going to be easy but I feel hopeful for the first time in a while. She confirmed my suspicions. My occipital nerve is inflamed. Once aggravated it can be difficult to calm down.

  • I’ve started taking amitriptyline daily before bed, and will slowly increase the dosage on a schedule.
  • June 1st I received an occipital nerve block injection in the back of my skull and trigger point injections in my neck and shoulders. A cocktail of pain killers and prednisone.

The specialist made referrals for:

  • A sleep study (consultation is this week)
  • A TMJ specialist (need to start wearing my night guard again)
  • Physical therapy (first appointment is coming up)

I like posting about these topics to raise awareness, and it gets people talking and sharing their experiences. But I want to point out the tremendous amount of privilege I have. I’ve got great health insurance through my employer, a flexible work schedule, and a reliable car. And it still took that long to get a treatment plan in place. It’s so much harder for folks who don’t have the advantages I’ve got.

June is National Migraine & Headache Awareness Month
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Progress Not Perfection

Last year, I started working for my current employer just weeks before Global Accessibility Awareness Day 2022. I wasn’t involved much in the planning of that event. But for GAAD 2023? I was all in. So much so, I was even flown out to HQ in New Jersey for my first business trip since before the pandemic. It was wonderful to meet many of my colleagues for the first time after working with them for over a year.

In my role of Principal Accessibility Engineer, I have been able to grow our program this past year. Beyond our Product and UX teams. Colleagues across the company have had more accessibility questions both general and specific. In addition to the a11y course we deliver to devs, I created a general accessibility overview course for all onboarding employees. I hope to expand that offering to include all employees eventually.

Likewise, for GAAD this year we wanted to include everyone. We pulled panelists from Legal, DEI, Technical Writing, and Product. To discuss how far the company has come on its accessibility journey, and where we’d like to grow. Hence the Progress Not Perfection theme. We also partnered with the mission-driven Knowbility for our keynote which covered everything from industry trends to creating accessible content. And our team in India held their own event complete with demonstrations, activities, prizes, and lunch. Feels great to have another successful GAAD outreach event in the books!

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World Usability Day 2022

The annual global event, World Usability Day, will be observed on Thursday, November 10th, 2022. I’m slated to deliver accessibility training to international colleagues that day, so I’ll be missing my local UXPA MN event but I’m a big fan. World Usability Day is a single day of events occurring around the world that brings together communities of professional, industrial, educational, citizen, and government groups for a common objective: to ensure that the services and products important to life are easier to access and simpler to use. The theme for this year’s World Usability Day is “Our Health.”

In our theme “Our Health” we look to explore systems that provide healthcare in all its many forms such as virtual/telehealth, electronic health records, healthcare products and all digital health related solutions. This theme will help us explore timely and important issues such as continuity of care, access to treatment, telemedicine, systems for mental health, exercise, nutrition and many more. In addition, Our Health includes health problems related to environmental issues such as air and water pollution impact on health.

World Usability Day

Participate in one of the global events, if you are able to. And be sure to sign the Usable Tech for Good petition.

If the UN recognizes usability as a core digital technology value, this will create an awareness of HCI/UX at the policy making level, increase the public engagement with the investment in user experience, potentially lead to a global impact, and let usability do its part for the UN’s Sustainable Development Goals. 

WorldUsability Initiative
World Usability Day logo with the earth surrounded by a green circle and the text Make Things Easier Day
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