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Category: autism

Disability Pride Month 2025

Despite the grim state of things in the US, it is still Disability Pride Month. And I have multiple non-apparent disabilities: Endometriosis, migraines, occipital neuralgia, misophonia, autism + ADHD (sometimes shortened to AuDHD). One aspect that is less commonly discussed is proprioception.

Proprioception

My understanding of proprioception began when my son was diagnosed with autism. It is one of many factors that motivated me to pursue an autism assessment for myself. Proprioception, often referred to as the body’s “sixth sense,” is awareness of one’s body position and movement in space. It encompasses sensations such as muscle contraction and stretching, as well as deep pressure or squeezing.

My son tends to be under-responsive to proprioceptive stimuli, while I experience hypersensitivity:
“Individuals who are oversensitive to proprioception may have difficulty comprehending where their body is relative to other objects.”

After I went to the gym last night, I fumbled my giant container of protein shake powder and spilled it all over the floor. This morning I knocked my coffee mug over. I often find my phone and other objects slipping from my hands. This clumsiness can be a nuisance. But I’ve also dropped vital prescription medication while trying to take it and even fumbled entire bottles of prescription meds.

Other aspects of hypersensitivity can be more difficult

  1. Increased pain perception. While some autistic people may exhibit a higher tolerance for certain types of pain, many experience heightened pain sensitivity and may feel pain more intensely than others. This can manifest as a lower pain threshold or a prolonged experience of pain, even from stimuli that might others might find tolerable.
  2. Heightened tactile sensitivity. Autistic people may experience heightened sensitivity to touch, pressure, and movement. This can lead to increased awareness of physical contact and, in some cases, discomfort or pain from specific textures of clothing or being jostled in crowds. Crowds are particularly tough for me due to my height (barely five feet tall).
  3. Increased sensitivity to certain sounds. Sounds might seem louder to an autistic person, which might make them react to sounds more strongly. This is where my misophonia comes into play, personally.

Working with my neurologist, a physical therapist, and a personal trainer have helped manage these sensitivities to some extent but not everyone has access to these resources. Family members, friends, coworkers, and classmates have teased me about my clumsiness. I encourage others to consider the impact before commenting on someone else’s clumsiness or sensitivities.

A black and white mug sitting on a table with a black and white fabric tablecloth. A large amount of the coffee in the mug has been spilled onto the tablecloth.
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X marks the spot

In 2018, Minnesota became the sixth state in the US to permit nonbinary designations on state ID. Early in 2020, I realized my drivers license would be up for renewal and looked forward to changing my gender marker. Then COVID hit.

In June 2020, I had the option to renew my DL online, as it was. Or go in person to make any changes. At the time, we were still a year away from a COVID vaccine so I chose the physically safer option. But today, the wait was over. I was able to quickly change my gender designation to nonbinary. And update my photograph (my hair color and eyeglasses have changed 5 or 6 times in the last 8 years).

Since my last drivers license renewal, I’ve also been formally diagnosed with Autism and ADHD.

Studies suggest that individuals with gender and sexual identities outside the cis-hetero binary were also three to six times more likely to have a diagnosis of autism.

The Swaddle: The Link Between Neurodivergence and Queerness, Explained

This all serves to help me understand myself and feel more confident in myself. Happy Pride, all!

Person holding a nonbinary flag over the head with stripes in yellow, white, purple, and black
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Autism Awareness Month

This is my first April celebrating Autism Awareness / Acceptance month since I was formally diagnosed with autism myself. I believe self-diagnosis is perfectly valid, but I wanted to learn more. Not just for myself, but for my community. Last year I worked with an incredible neurodiversity affirming clinician. She was excited to dive in and learn about my wiring. She helped me understand more about how my neurocomplexity impacts my personal and professional life. In my professional life, in the accessibility space, I continue to encourage others to learn more about neurodivergence. And provide guidance about how to support neurodiversity in the workplace.

Two main tips:

  • Communicate as clearly as possible. Ellie Middleton posted a wonderful video on how to give neurodivergent friendly instructions. It’s short and simple! Please watch it.
  • Be accepting of autistic (or other) behaviors that might deviate from the norm. Personally, I used to expend SO much energy attempting to mask to fit in while in shared office spaces. Working remotely has allowed me to channel that energy to focus on the work itself. But not everyone is so lucky. To learn more about masking, check out autistic reporter Eric Garcia’s great interview with autistic social psychologist Devon Price, PhD. The timing worked out perfectly. I ordered a copy of Devon’s book, Unmasking Autism: Discovering the New Faces of Neurodiversity, and it arrived just now, on World Autism Day.

I’ve been working in tech for 30+ years at this point. But many autistic people experience high rates of unemployment and underemployment compared to adults with other disabilities and adults in the general population. This needs to change. Sustainable progress will require a real, measurable commitment to neuroinclusion. Which includes working with autistic and other neurodivergent people to foster lasting change.

A book resting on a yellow chair. The cover reads Discovering the New Faces of Neurodiversity, Unmasking Autism by Devon Price, PhD, author of Laziness Does Not Exist
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